Resources

CCD Chair Statement on COVID-19 and the Ending of the Public Health Emergency. Consortium for Constituents with Disabilities (CCD) [Statement]. May 17, 2023

Medicaid Unwinding Resources. National Disability Navigator Resource Collaborative (NDNRC) [Resources]. Updated May 2023 

End of PHE #COVIDIsNotOver Toolkit. American Association of People with Disabilities (AAPD) [Toolkit]. May 11, 2023

AAPD Calls for Resources and Protection Following End of COVID-19 Public Health Emergency. American Association of People with Disabilities (AAPD) [Statement]. May 11, 2023

Task Force Responses

Health Task Force
Letter to CDC on Need for Better Guidance on COVID-19 Vaccine Boosters and Additional Doses
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned members of the CCD Health Task Force and allies are writing to ask for more guidance and outreach on vaccine boosters and additional doses for people with disabilities and chronic conditions.
(October 19,  2021) - Download [ PDF ]

Long Term Services and Supports Task Force
CCD DAC COVID HCBS Letter
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the selfdetermination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The Disability and Aging Collaborative (DAC) is a coalition of approximately 40 national organizations that work together to advance long-term services and support policy at the federal level.
(February 2,  2021) - Download [ PDF ] 

Education Task Force
CCD Education Taskforce on the Importance of State Assessments & Strong Accountability for Students with Disabilities
The COVID-19 pandemic has brought with it unprecedented challenges, particularly for students who have been historically underserved and marginalized, including the nation’s 7 million students with disabilities. The experience of students with disabilities has varied dramatically from district to district and state to state. For example, some students have not received the services guaranteed to them through their Individualized Education Programs (IEPs) and others have developed new and different needs as a result of the disruption the pandemic has caused.
(February 1,  2021) - Download [ PDF ]

Social Security Task Force
Response from SSA Commissioner Saul to the SS task force’s letter on the Social Security task
Thank you for your October 23, 2020 letter on the status of continuing disability review (CDR) processing during the COVID-19 national public health emergency. We share your commitment to ensuring that our CDR process is fair and efficient, and we have implemented procedures to safeguard the rights of beneficiaries and respond to the unique challenges presented by COVID- 19.
(January 15,  2021) - Download [ PDF ]

Education Task Force
CCD Education task force letter re next COVID relief package
Dear Majority Leader McConnell, Minority Leader Schumer, Chairman Alexander, and Ranking Member Murray: The undersigned members of the Consortium for Citizens with Disabilities (CCD) Education Task Force write to urge you to prioritize and address the needs of children with disabilities, their families, and the professionals who serve them as you work to finalize the next emergency relief bill in response to the COVID-19 pandemic. CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.
(December 3,  2020) - Download [ PDF ]

Letter from the CCD LTSS, Health, and Rights Task Force to the Biden-Harris Transition COVID-19 Advisory Board
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society. CCD members represent a broad range of stakeholders – people with disabilities and their families, older adults, disability service providers and workers, healthcare professionals, and state systems that provide disability services – who advocate on behalf of adults and children with all types of disabilities, including people with physical, intellectual, developmental, and mental health disabilities, chronic health conditions, and older adults.
(November 20,  2020) - Download [ PDF ]

CCD Rights, LTSS and Health TF Letter re Senate COVID Package
The undersigned co-chairs of the Consortium for Citizens with Disabilities (CCD) Rights, Health, and Long-Term Services and Supports Task Forces write to express our strong opposition to the SAFE TO WORK Act and deep concern about critically important measures that are not included in other portions of the Senate’s COVID-19 relief package. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(July 30,  2020) - Download [ PDF ]

Long Term Services and Supports Task Force
Comments on CMS Interim Final Rule re Nursing Home COVID-19 Reporting Requirements
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned co-chairs of the CCD Long-Term Services and Supports Task Force write to implore HHS to include all institutional facilities that receive Medicaid funding, not just nursing homes, in its interim final rule on nursing home COVID-19 reporting requirements.
(July 7,  2020) - Download [ PDF ] 

Technology and Telecommunication Task Force
CCD Tech TF Letter on COVID 4.0
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. On behalf of the undersigned co-chairs of the CCD Technology and Telecommunications Task Force, we write in response to the growing needs of people with disabilities nationwide in the face of the COVID-19 pandemic. The federal legislative response so far has largely ignored many critical needs of the disability community.
(June 26,  2020) - Download [ PDF ]

Health Task Force
CCD Health Task Force covid package 4 letter
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Health Task Force write to underscore our support for urgent legislation to help all Americans, including people with disabilities, to cope with the ongoing risks and ramifications of the COVID-19 pandemic. A fourth COVID-19 response package is necessary to provide critical resources to the disability community, which has been disproportionately affected by the disease.
(July 6,  2020) - Download [ PDF ]

Long Term Services and Supports Task Force
National and State Sign on COVID 19 Senate Letter
The 252 undersigned member organizations of the Consortium for Citizens with Disabilities (CCD), Disability and Aging Collaborative (DAC), and other state and national organizations write to urge you to include the vital needs of people with disabilities and aging adults in the next COVID-19 relief package.
(June 15,  2020) - Download [ PDF ]

Rights Task Force
CCD Rights and Employment letter to EEOC re EEOC's guidance on COVID-19 and ADA
We write as co-chairs of the Consortium for Citizens with Disabilities (CCD) Rights and Employment Task Forces to urge the Commission make important clarifications to its recent statements regarding the “direct threat” analysis in the context of COVID-19. We also encourage the Commission to provide additional guidance regarding reasonable accommodations for employees with disabilities related to the pandemic.
(June 10,  2020) - Download [ PDF ]

Long Term Services and Supports Task Force
CCD LTSS TF Letter to Senate on Pakage Four
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(May 29,  2020) - Download [ PDF ]

Long Term Services and Supports Task Force
LTSS Task Force comments to the Senate Aging Committee hearing “Caring for Seniors Amid the COVID-19 Crisis”
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the selfdetermination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned co-chairs of the CCD Long Term Services and Supports Task Force write in response to today’s hearing, “Caring for Seniors Amid the COVID-19 Crisis.”
(May 20,  2020) - Download [ PDF ]

Housing Task Force
Frequently Asked Questions: housing needs of people with disabilities during the COVID-19 crisis
FAQ on Housing Issues for People with Disabilities During the COVID-19 Crisis by the CCD Housing Task Force and the National Low income Housing Coalition.
(May 19,  2020) - Download [ PDF ]

Housing Task Force
Frequently Asked Questions: housing needs of people with disabilities during the COVID-19 crisis [Spanish Version]
FAQ on Housing Issues for People with Disabilities During the COVID-19 Crisis by the CCD Housing Task Force and the National Low income Housing Coalition.
(May 19,  2020) - Download [ PDF ]

Financial Security Task Force
CCD Letter to Congress on SNAP Bills
The undersigned members of the Consortium for Citizens with Disabilities (CCD) write in support of policy changes that would allow people with disabilities to safely utilize their Supplemental Nutrition Assistance Program (SNAP) benefits during this pandemic. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(May 14,  2020) - Download [ PDF ]

CCD Transportation TF HEROES Act Mask Requirements Letter
The Consortium for Citizens with Disabilities (CCD) Transportation Task Force Co-Chairs write to urge you to consider amending mask and protective face covering requirements for all passengers in transit, Amtrak and air travel in in the HEROES Act, and to take into consideration the needs of people with disabilities. We also urge you to consider any unintended enforcement consequences that could lead to a disparate impact on low income travelers and people of color.
(May 13,  2020) - Download [ PDF ]

Education Task Force
CCD Ed TF letter to Congress on IDEA waivers COVID
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Education Task Force and allies submit this letter in response to the directive that the Secretary of Education submit, within 30 days of enactment of the Coronavirus Aid, Relief, and Economic Security (CARES) Act a report to Congress with recommendations on any additional waivers the Secretary deems necessary under the Individuals with Disabilities Education Act (IDEA) and the Rehabilitation Act of 1973 (Rehabilitation Act) and other education laws.
(May 7,  2020) - Download [ PDF ]

Long Term Services and Supports Task Force
Letter to CMS and ACL re nursing home initiatives
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society. The undersigned co-chairs of the CCD Long-term Services and Supports taskforce write in response to the Administration’s recent announcement of the creation of an independent commission to address safety and quality in nursing homes.
(May 5,  2020) - Download [ PDF ]

Financial Security Task Force
CCD Support Letter for Representative Kildee UI Bill
The undersigned members of the Consortium for Citizens with Disabilities (CCD) and allies write to express our support of the Strengthening UI for Coronavirus Impacted Workers and Students Act. The CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(April 30,  2020) - Download [ PDF ]

Financial Security Task Force
Dependents Stimulus Fix Leadership Letter
The undersigned members of the Consortium for Citizens with Disabilities (CCD) and allies write in support of Sen. Smith and Rep. Craig’s efforts to provide dependent stimulus payments to adult dependents, many of whom are people with disabilities. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(April 30,  2020) - Download [ PDF ]

Financial Security Task Force
Dependents Stimulus Fix Support Letter
The undersigned members of the Consortium for Citizens with Disabilities (CCD) and allies write in support of your efforts to provide dependent stimulus payments to adult dependents, many of whom are people with disabilities. We thank you for your work to make sure all dependents are treated equitably and receive the help they need during this difficult time.
(April 30,  2020) - Download [ PDF ]

Rights Task Force
CCD Sign on letter to Governor - supporters in hospitals
The undersigned members of the Consortium for Citizens with Disabilities (CCD) and allies write to ask you to ensure that hospital and other healthcare provider visitor policies include reasonable modifications for people with disabilities who need the physical presence of a support person in order to ensure equal access to health care. Although safety concerns are paramount, numerous states, including New York, have already clarified visitor policies to ensure that individuals with disabilities have access to necessary in-person supports while hospitalized.
(April 29,  2020) - Download [ PDF ]

Rights Task Force
CCD sign ons letter to Hospital Administrator - supporters in hospitals
The undersigned members of the Consortium for Citizens with Disabilities (CCD) and allies write to ask you to ensure that hospital and other healthcare provider visitor policies include reasonable modifications for people with disabilities who need the physical presence of a support person in order to ensure equal access to health care. Although safety concerns are paramount, numerous states, including New York, have already clarified visitor policies to ensure that individuals with disabilities have access to necessary in-person supports while hospitalized.
(April 29,  2020) - Download [ PDF ]

Rights Task Force
Letter to HHS, CMS and CDC requesting data collection and reporting on COVID 19's impact on people with disabilities
The undersigned national disability organizations write to you as the co-chairs of the Consortium for Citizens with Disabilities (CCD) Rights Task Force to urge you to collect and report data concerning the impact of COVID-19 on people with disabilities. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(April 27,  2020) - Download [ PDF ]

Developmental Disabilities, Autism and Family Support Task Force
CCD Developmental Disabilities TF letter to Leadership on COVID-19 Priorities for Package Four
Thank you for your leadership in addressing the unprecedented COVID-19 crisis for all Americans, including those who are at high risk for the virus – people with developmental disabilities. We greatly appreciated the 6.2% increase in the Medicaid federal medical assistance percentage (FMAP) in the Families First Coronavirus Response Act (FFCRA) and expect this amount to be increased in the next package.
(April 24,  2020) - Download [ PDF ]

Developmental Disabilities, Autism and Family Support Task Force
CCD Developmental Disabilities TF letter to Congressional Committees on COVID-19 Priorities for Package Four
Thank you for your leadership in addressing the unprecedented COVID-19 crisis for all Americans, including those who are at high risk for the virus – people with developmental disabilities. We greatly appreciated the 6.2% increase in the Medicaid federal medical assistance percentage (FMAP) in the Families First Coronavirus Response Act (FFCRA) and expect this amount to be increased in the next package.
(April 24,  2020) - Download [ PDF ]

Consortium for Citizens with Disabilities - COVID-19 Legislative Response: [Recording]

Financial Security Task Force
CCD Letter to USDA on Expanding Pilot
The undersigned members of the Consortium for Citizens with Disabilities (CCD) write to urge the U.S. Department of Agriculture (USDA) to expand the Supplemental Nutrition Assistance Program (SNAP) Online Purchasing Pilot program to all states and territories and extend eligibility for the program to more retailers.
(April 23,  2020) - Download [ PDF ]

Financial Security Task Force
CCD Letter to Congress on Expanding Pilot
The undersigned members of the Consortium for Citizens with Disabilities (CCD) write to urge Congress to include improvements to Supplemental Nutrition Assistance Program (SNAP) for people with disabilities in the next COVID-19 response legislation. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(April 23,  2020) - Download [ PDF ]

Long Term Services and Supports Task Force
Letter to CMS and CDC re the nursing home COVID-19 transparency effort
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society. The undersigned co-chairs of the CCD Long-term Services and Supports taskforce write in response to the Administration’s “New Nursing Homes COVID-19 Transparency Effort” announcement earlier this week.
(April 21,  2020) - Download [ PDF ]

Social Security Task Force
Letter to Commissioner Saul on covid-19 response.
Thank you for all the work you and your staff are doing to adapt the Social Security Administration’s activities and keep the public informed during these challenging times. We, the undersigned co-chairs of the Consortium for Citizens With Disabilities’ Social Security Task Force, realize this is an enormous task, but one that is vital to the nearly 70 million Americans who receive Social Security benefits and the millions more who use SSA’s other services.
(April 17,  2020) - Download [ PDF ]

Long Term Services and Supports Task Force
CCD LTSS Co-Chair HCBS Grant Letter
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The undersigned co-chairs of the CCD Long-term Services and Supports taskforce write in response to the growing outbreak of COVID-19 across the United States, and the growing need for home and community-based services (HCBS) of people with disabilities in the face of the pandemic.
(April 13,  2020) - Download [ PDF ]

Education Task Force
CCD Ed TF letter on IDEA COVID funding
More than seven million school-aged students, approximately 13% of the total student enrollment, are currently entitled to individualized education and related services mandated by the Individuals with Disabilities Education Act (IDEA). Unfortunately, the COVID-19 pandemic has illuminated the impact of the historic and continuous gross underfunding of IDEA which has further exposed the great strain that the lack of adequate IDEA funding places on state and local education systems.
(April 9,  2020) - Download [ PDF ]

Education Task Force
CCD Ed TF letter to Congress on IDEA waivers & COVID
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Education Task Force and allies submit this letter in response to the directive that the Secretary of Education submit, within 30 days of enactment of the Coronavirus Aid, Relief, and Economic Security (CARES) Act a report to Congress with recommendations on any additional waivers the Secretary deems necessary under the Individuals with Disabilities Education Act (IDEA) and the Rehabilitation Act of 1973 (Rehabilitation Act) and other education laws.
(April 9,  2020) - Download [ PDF ]

Letter to SSA, Treasury, and VA on Ensuring Beneficiaries Can Receive Recovery Rebates Without Filing Tax Returns.
The undersigned members of the Consortium for Citizens with Disabilities (CCD) and allied organizations write in response to the recently passed Coronavirus Aid, Relief, and Economic Security (CARES) Act, Public Law Number 116-136.
(April 3,  2020) - Download [ PDF ]

Education Task Force
CCD Education Task Force letter to ED on IDEA COVID
The undersigned members of the Consortium for Citizens with Disabilities (CCD) Education Task Force and allies submit this letter in response to the directive that the Secretary of Education submit, within 30 days of enactment of the Coronavirus Aid, Relief, and Economic Security (CARES) Act a report to Congress with recommendations on any additional waivers the Secretary deems necessary under the Individuals with Disabilities Education Act (IDEA) and the Rehabilitation Act of 1973 (Rehabilitation Act) and other education laws. The undersigned organizations are unwavering in our pursuit of educational equity and stand unified in the strong conviction that NO ADDITIONAL waivers are necessary under either the IDEA or the Rehabilitation Act.
(April 3,  2020) - Download [ PDF ]

CCD COVID-19 Package Four Letter
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. We write in response to the growing outbreak of COVID-19 across the United States, and the growing needs of people with disabilities in the face of the pandemic. The first three legislative packages all but ignored the critical needs of the disability community.
(April 2,  2020) - Download [ PDF ]

Transportation Task Force
CCD Transportation Task Force letter to USDOT re: Disability Community Access and Safety During and After COVID-19
We write as members and friends of the Consortium for Citizens with Disabilities (CCD) Transportation Task Force to urge you to ensure that transportation service responses to COVID-19 do not discriminate based on disability, that service is maintained in line with public health and social distancing standards, and the needs of workers and passengers with disabilities are met. CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(March 24,  2020) - Download [ PDF ]

Letter re COVID-19 and Disability Discrimination
We write as co-chairs of the Consortium for Citizens with Disabilities (CCD) Rights and Health Task Forces to urge you to ensure that, if the current pandemic results in government decisions to ration treatment, decisions about how medical treatment should be allocated are made without discriminating based on disability. The CCD is the largest coalition of national organizations working together to advocate for Federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(March 20,  2020) - Download [ PDF ] 

CCD COVID 19 Letter to Senate
The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the selfdetermination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
(March 14,  2020) - Download [ PDF ]

Emergency Management Task Force
Letter to Education and Labor Committee Members urging movement on REAADI for Disasters Act as a response to COVID-19
As the nation grapples with the growing COVID-19 [coronavirus] outbreak, the undersigned disability advocacy organizations urge you, as policymakers responsible for overseeing federal disaster response programs, to ensure that the rights and needs of people with disabilities and those with access and functional needs are taken into account in this latest emergency. There are sixty-one million Americans with disabilities and we believe the time has come for your committees to act on legislation that will improve the inclusion of individuals with disabilities in preparing for, responding to and recovering from major disasters.
(March 13,  2020) - Download [ PDF ]

Emergency Management Task Force
Letter to Transportation and Infrastructure Committee Members urging movement on REAADI for Disasters Act as a response to COVID-19
As the nation grapples with the growing COVID-19 [coronavirus] outbreak, the undersigned disability advocacy organizations urge you, as policymakers responsible for overseeing federal disaster response programs, to ensure that the rights and needs of people with disabilities and those with access and functional needs are taken into account in this latest emergency. There are sixty-one million Americans with disabilities and we believe the time has come for your committees to act on legislation that will improve the inclusion of individuals with disabilities in preparing for, responding to and recovering from major disasters.
(March 13,  2020) - Download [ PDF ]