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Page title graphic: Member Organizations

Following is a list of the approximately 100 CCD member organizations.
Click on the letters below to jump to a particular organization.

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
AARP
601 E Street, NW
Washington, DC 20049
(202) 434-3704 (office)
(202) 434-2320 (fax)
www.aarp.org
Daniel Kohrman dkohrman@aarp.org
Julie Nepveu jnepveu@aarp.org
Adapted Physical Activity Council (APAC)
2322 40 th Place, NW, Ste. 203
Washington, DC 20007
(202) 295-9033 (office)
(202) 295-9034 (fax)
David Auxter dauxter@verizon.net
Alexander Graham Bell Association for the Deaf and Hard or Hearing (AG Bell)
3417 Volta Place, NW
Washington, DC 20007
(202) 337-5220 (office)
(202) 337-8314 (fax)
www.agbell.org

Judy Harrison jharrison@agbell.org
American Academy of Neurology (AAN)
1501 M NW, 7 th Floor
Washington, DC 20005
(202) 466-6550 (office)
(202) 785-1756 (fax)
Emily Niederman emily.niederman@ppsv.com
Peter Thomas pthomas@ppsv.com
Mike Amery mamery@aan.com
American Academy of Pediatrics (AAP)
601 13 th Street, NW, Ste. 400N
Washington, DC 20005
(202) 347-8600 (office)
(202) 393-6137 (fax)
www.aap.org
Mark Del Monte mdelmonte@aap.org
Cindy Pellegrini cpellegrini@aap.org
American Academy of Physical Medicine and Rehabilitation (AAPM&R)
1501 M NW, 7 th Floor
Washington, DC 20005
(202) 466-6550 (office)
(202) 785-1756 (fax)
www.aapm&r.org
Emily Niederman emily.niederman@ppsv.com
Peter Thomas pthomas@ppsv.com
American Association of People with Disabilities (AAPD)
1629 K St., NW Suite 503
Washington, DC 20006
(202) 457-0046 (office) V/TTY
(202) 457-0473 (fax)
www.aapd-dc.org
Helena Berger hberger952@aol.com
John Bollinger jcbollinger@gmail.com
Jim Dickson jamescdickson@earthlink.net
Jenifer Simpson aapdjenifer@aol.com
Anne Sommers aapdanne@earthlink.net
American Association on Health and Disability (AAHD)
110 N. Washington Street, #340-A
Rockville, MD 20850
(301) 545-6140 (office)
(301) 545-6144 (fax)
www.aahd.us
Roberta Carlin rcarlin@aahd.us
Adrian Lozano alozano@aahd.us
American Association on Intellectual and Developmental Disabilities (AAIDD)
444 North Capitol Street, NW, Ste. 846
Washington, DC 20001-1512
(202) 387-1968 (office)
(202) 387-2193 (fax)
www.aaidd.org
Doreen Croser dcroser@aaidd.org
Laura Abulafia labulafia@aaidd.org
American Congress of Community Supports and Employment Services andDisability Service Providers of America Alliance (ACCSES-DSPA Alliance)
1501 M NW, 7 th Floor
Washington, DC 20005
(202) 466-3355 (office)
(202) 466-7571 (fax)
www.accses.org
Emily Niederman emily.niederman@ppsv.com
Peter Thomas pthomas@ppsv.com
American Council of the Blind (ACB)
1155 15 th Street, NW, Ste. 1004
Washington, DC 20005
(202) 467-5081 (office)
(202) 467-5085 (fax)
www.acb.org
Philip Strong pstrong@acb.org
Eric Bridges ebridges@acb.org

American Counseling Association (ACA)
5999 Stevenson Avenue
Alexandria, VA 22304-3300
(703) 823-9800 (office)
(703) 823-0252 (fax)
www.counseling.org
Scott Barstow sbarstow@counseling.org
Chris Campbell ccampbell@counseling.org
American Dance Therapy Association (ADTA)
7700 Willow Brook Road
Fairfax Station, VA 22039
(703) 250-3414 (office)
(703) 250-3414 (fax)
www.adta.org
Dianne Dulicai Dianne.dulicai@get.net
American Diabetes Association (ADA)
1701 North Beauregard Street
Alexandria, VA 22311
(703) 299-5519 (office)
(703) 549-8748 (fax)
www.diabetes.org

Shereen Arent sarent@diabetes.org
Abby Bownas abownas@diabetes.org
American Foundation for the Blind (AFB)
1660 L St., N.W, Ste. 513
Washington, DC 20036
(202) 822-0830 (office/TDD)
(202) 822-0838 (fax)
www.afb.org
Mark Richert 202-822-0833 direct line
mrichert@afb.net
American Medical Rehabilitation Providers Association (AMRPA)
1710 N Street, NW
Washington, DC 20036-2907
(202) 822-0830 (office)
(202) 822-0838 (fax)
www.amrpa.org
Carolyn Zollar czollar@13x.com
Peter Thomas pthomas@ppsv.com
Lucy Adepoj ladepoj@13x.com
American Music Therapy Association (AMTA)
8455 Colesville Road, Ste. 1000
Silver Spring, MD 20910
(301) 589-3300 (office)
(301) 589-5175 (fax)
www.musictherapy.org

Judy Simpson simpson@musictherapy.org
American Network of Community Options and Resources (ANCOR)
1101 King Street, #380
Alexandria, VA 22314
(703) 535-7850 (office)
(703) 535-7660 (fax)
www.ancor.org
Suellen Galbraith sgalbraith@ancor.org
Jessica Sadowsky jsadowsky@ancor.org
American Occupational Therapy Association (AOTA)
4720 Montgomery Lane
Bethesda, MD 20824-1220
(301) 652-2682 (office)
(301) 652-7711 (fax)
www.aota.org
Dan Jones djones@aota.org
Tim Nanof tnanof@aota.org
Sandy Schefkind sschefkind@aota.org
American Physical Therapy Association (APTA)
1111 N. Fairfax Street
Alexandria, VA 22314
(703) 706-3162 (office)
(703) 706-3246 (fax)
www.apta.org
Shay Rogers shayrogers@apta.org
Angela Chasteen angelachasteen@apta.org
Roshunda Drummond-Dye roshundadrummond-dye@apta.org
Rachel Reiter rachelreiter@apta.org
Justin Moore justinmoore@apta.org
American Psychological Association (APA)
750 First Street, NE
Washington, DC 20002-4242
(202) 336-5500 (office)
(202) 336-6123 (TDD)
(202) 336-6040 (fax)
www.apa.org/ppo/
Anju Khubchandani akhubchandani@apa.org
Day Al-Mohamed DWilliamsAl-Mohamed@apa.org
Annie Toro atoro@apa.org
American Society for Deaf Children (ASDC)
P.O. Box 685
Washington Grove, MD 20880
(301) 990-2847 (office)
(301 990-2848 (fax)
www.deafchildren.org
Cheri Dowling CAD800@aol.com
American Speech-Language-Hearing
Association (ASHA)
444 N. Capitol Street, NW, Ste. 715
Washington, DC 20001
(202) 624-5953 (office)
(202) 624-5955 (fax)
www.asha.org
Catherine Clarke cclarke@asha.org
Deborah Darcy ddarcy@asha.org
Susan Karr skarr@asha.org
Neil Sndyer nsnyder@asha.org
American Therapeutic Recreation Association (ATRA)
1414 Prince Street, Ste. 204
Alexandria, VA 22314
(703) 683-9420 (office)
(703) 683-9431 (fax)
www.atra-tr.org
Ann Huston national@atra-tr.org
Emily Niederman emily.niederman@ppsv.com
Peter Thomas pthomas@ppsv.com
APSE – The Network on Employment
206 W. Glendale Ave.
Alexandria, VA 22301
(703) 683-1166 (office)
(804) 278-9377 (fax)
www.apse.org
Celane McWhorter celane@yahoo.com
Laura Owens lowens@apse.org
Association of Assistive Technology Act Programs (ATAP)
P.O. Box 32
Delmar, NY 12054
(518) 439-1263
(518) 439-3451 (fax)
www.ataporg.org
Deborah Buck dvbuck@verizon.net
Debra Parker Wolfenden medpw@verizon.net
(207) 833-2935
Krista Heckler kheckler@wpllc.net
1101 Vermont Ave., NW, Ste. 400
Washington DC 20005
(202) 289-3903 (office)
(202) 371-0197 (fax)
Ellin Nolan enolan@wpllc.net
Association of University Centers on Disabilities (AUCD)
1010 Wayne Ave., Ste. 920
Silver Spring, MD 20910
(301) 588-8252 (office)
(301) 588-2842 (fax)
www.aucd.org
Kim Musheno kmusheno@aucd.org
Rhoda Schulzinger rschulzinger@aucd.org
Joe Caldwell jcaldwell@audc.org
David Morrissey dmorrissey@aucd.org
Marty Blair martin.blair@usu.edu
Ylla Nikola-Lisa ynikola-lisa@aucd.org
Autism Society of America (ASA)
7910 Woodmont Ave., Ste. 300
Bethesda, MD 20814
(301) 657-0881 (office)
(301) 657-0869 (fax)
www.autism-society.org
Marguerite Colston mcolston@autism-society.org
Autism Speaks
c/o IKON Public Affairs
1101 30 th Street, NW, #220
Washington, DC 20007
(202) 337-6600 (office)
(202) 558-6492 (fax)
www.autismspeaks.org
Craig Snyder snyder@ikoninc.net Ed Long el@capitolassociates.com
Rebecca Shaffer rshaffer@autismspeaks.org
1307 N 14th Street
Arlington, VA 22209
(703) 465-0940 (office)
Elizabeth Emken eemken@autismspeaks.org
2 Park Avenue, 11 th Floor
New York, NY 10016
(925) 915-0138 (office)
(925) 838-8562 (fax)
Bazelon Center for Mental Health Law (BCMHL)
1101 15 th Street, NW, Ste. 1212
Washington, DC 20005
(202) 467-5730 (office)
(202) 223-0409 (fax)
www.bazelon.org

Laurel Stine laurels@bazelon.org
Elizabeth Lind elizabethl@bazelon.org
Chris Koyanagi karens@bazelon.org
Jennifer Mathis jenniferm@bazelon.org
Center for Disability Issues and the Health Professions (CDIHP)
1660 L Street, NW, #701

Washington, DC 20036
(202) 393-4446 (office)
(202) 783-8250 (fax)
www.cdihp.org

Curtis Richards advocrat@aol.com
June Isaacson Kailes jik@pacbell.net
6201 Ocean Front Walk, Suite 2
Playa Del Rey, CA 90293
(310) 821-7080 (office)
(310) 827-0269 (fax)
(310) 469-5520 (TTY)
Center for Medicare Advocacy, Inc. (CMA)
1101 Vermont Ave., NW, #1001
Washington, DC 20005
(202) 216-0028 (office)
(202) 216-0119 (fax)
www.medicareadvocacy.org
Alfred J. Chiplin achiplin@medicareadvocacy.org  
Center for Workers with Disabilities(CWD)
810 First Street, NE Suite 500
Washington, DC 20002
(202) 682-0100, ext. 247 phone
(202) 289-6555 fax
http://cwd.aphsa.org
Nanette Relave NRelave@aphsa.org
Damon Terzaghi damon.terzaghi@aphsa.org
Center on Budget and Policy Priorities (CBPP)
820 First Street, NE, Suite 510
Washington, DC 20002
(202) 408-1080 (office)
(202) 408-1056 (fax)
www.cbpp.org
Judy Solomon solomon@cbpp.org
Children and Adults with Attention-Deficit/ Hyperactivity Disorder (CHADD)
8181 Professional Place, Ste. 150
Landover, MD 20785
(301) 306-7070 (office)
(301) 306-7090 (fax)
www.chadd.org
Paul Seifert paul_seifert@chadd.org
Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD)
P.O. Box 685
Washington Grove, MD 20880
(301) 990-2847 (office)
(301) 990-2848 (fax)
www.ceasd.org

Barbara Raimondo baraimondo@earthlink.net
Council for Exceptional Children (CEC)
1110 North Glebe Road, Ste. 300 Arlington, VA 22201
(800) 224-6830 (office)
(703) 243-0410 (fax)
www.cec.sped.org
Daniel Blair danb@cec.sped.org
Deb Ziegler debz@cec.sped.org

Council for Learning Disabilities (CLD)
15122 Red Cedar Drive
Burtonsville, MD 20866-1386
(301) 549-1779 (home)
(410) 830-2733 (fax)
www.cldinternational.org
Debi Gartland gartland@towson.edu
Roberta Strosnider rstrosnider@towson.edu

Council of Parent Attorney and Advocates (COPAA)
PO BOX 6767
Towson, MD 21285
410-372-0208 (office)
410-372-0209(fax)
www.copaa.org
Robert Berlow robertberlow@comcast.net
Jessica Butler jessica@copaa.org
Denise Marshall denise@copaa.org

Council of State Administrators of Vocational Rehabilitation (CSAVR)
4733 Bethesda Avenue, #330
Bethesda, MD 20814
(301) 654-8414 (office)
(301) 654-5542 (fax)
www.rehabnetworking.org

Carl Suter csuter@rehabnetwork.org
Rita Martin rmartin@rehabnetwork.org
Disability Rights Education and Defense Fund, Inc. (DREDF)
1730 M Street N.W, #801
Washington, DC 20036
(800) 348-4232 (office)
www.dredf.org
Susan Henderson shenderson@dredf.org
Marilyn Golden mgolden@dredf.org
1629 Ward Street
Berkeley, CA 94703
(510) 549-9339 (office)
(510) 549-9449 (fax)

Division for Early Childhood of the CEC (DEC/CEC)
6129 Calico Pool Lane
Burke, VA 22015
(703) 250-4935 (office/fax)
www.dec-sped.org

Sharon Walsh walshtaylo@aol.com
Division for Learning Disabilities of CEC (DLD)
8917 Fargo Road
Richmond, VA 23229
(540) 831-5196 (office)
(540) 831-5124 (fax)
www.teachingld.org
Karen Rooney edenterinc@aol.com
Judy Engelhard jengelha@radford.edu
315 6th Ave. South
Surfside Beach, SC 29575-3505
(843) 232-0439 (office)
(843) 349-2940 (fax)
Jean Lokerson jlokerso@vcu.edu
3914 Monument Avenue
Richmond, VA 23230-3902
(804) 358-5474 (office & fax)
Kathleen J. Marshall kathleen@gwm.sc.edu
235 Wardlaw, USC
Columbia, SC 29208
(803) 777-6799 (office)
(803) 777-2824 (fax)

Easter Seals (ES)
1425 K Street, NW, Ste 200
Washington, DC 20005
(202) 347-3066 (office)
(202) 737-7914 (fax)
www.easter-seals.org

Jim Adams jadams@easterseals.com
Douglas B. Carmon dcarmon@easterseals.com
Jennifer Dexter jdexter@easterseals.com
Katy Neas kneas@easterseals.com
Randy Rutta rrutta@easterseals.com
Denise Rozell drozell@easterseals.com
Brad Turner bturner@easterseals.com
Mary Andrus mandrus@easterseals.com
Epilepsy Foundation (EF)
8301 Professional Place
Landover, MD 20785-2238
(301) 459-3700 (office)
(301) 577-2684 (fax)
www.epilepsyfoundation.org
Donna Meltzer dmeltzer@efa.org
Sandy Finucane afinucane@efa.org
Julie Yannes jyannes@efa.org
Gary Gross ggross@efa.org
Federation of Families for Children’s Mental Health (FFCMH)
1101 King Street, Suite 420
Alexandria, VA 22314
(703) 684-7710 (office)
(703) 836-1040 (fax)
www.ffcmh.org
 
Goodwill Industries International (GII)
15810 Indianola Drive
Rockville, MD 20855
(301) 333-5331 (office)
(301) 530-1516 (fax)
www.goodwill.org
Lisa Kindard lisa.kinard@goodwill.org
Charrisse Lyone charrisse.lyons@goodwill.org
Helen Keller National Center (HKNC)
111 Middle Neck Road
Sands Point, NY 11050
(516) 944-8900 (office)
(516) 944-8367 (TTY)
(516) 944-5984 (fax)
www.hknc.org

Michael Fagbemi mike.fagbemi@hknc.org
Higher Education Consortium for Special Education (HECSE)
c/o AACTE
1307 New York Ave., NW, Ste. 300
Washington, DC 20005
(202) 293-2450 (office)
www.hecse.org
Jane West jwest@wpllc.net
IDEA Infant and Toddler Coordinators Association
6129 Calico Pool Lane
Burke, VA 22015
(703) 250-4935 (office & fax)
www.ideainfanttoddler.org
Sharon Walsh walshtaylo@aol.com
Independence Care System (ICS)
257 Park Ave. South, 2 nd Floor
New York, NY 10010
(202) 730-7077 phone
www.icsny.org
Henry Claypool Henry.claypool@verizon.net
Inter/National Association of Business, Industry and Rehabilitation (I-NABIR)
P.O. Box 15242
Washington, DC 20003
(202) 543-6353 (office)
(202) 546-2854 (fax)
www.inabir.org
Charles Harles charlie@harles.com
Andrea Harles andrea@harles.com
Learning Disabilities Association of America (LDA)
4001 N 9 th Street, #505
Arlington, VA 22203
(703) 243-2614 (office)
(703) 243-0894 (fax)
www.ldaamerica.org
Justine Maloney justinelda@earthlink.net
Ann Vinup vinuplda@bcpl.net
1747 Wentworth Avenue
Baltimore, MD 21234
(1-410) 337-2121 (office)
(1-410) 665-3309 (fax)
Diane Chesley ruthches@comcast.net
Lutheran Services in America (LSA)
122 C Street, NW, Suite #125
Washington, DC 20001
(202) 626-7945 (office)
(202) 628-5421 (fax)
www.lutheranservices.org
Lisa Carr lcarr@lutheranservices.org
Mental Health America (MHA)
formerly National Mental Health Association (NMHA)
750 First Street, NE # 940
Washington, DC 20002
(202) 675-8381 (office)
(202) 675-8389 (fax)
www.nmha.org
Julio Abreu jabreu@nmha.org
National Alliance for Caregiving (NAC)
4720 Montgomery Lane, 5 th Floor
Bethesda, MD 20814
(301) 718-8444 (office)
(301) 652-7711 (fax)
www.caregiving.org
Gail Hunt gailhunt@caregiving.org Aileen Worrell aileen@caregiving.org
National Alliance on Mental Illness (NAMI)
2107 Wilson Boulevard, Ste. 300
Arlington, VA 22201

(703) 516-7222 (office)
(703) 516-0694 (fax)
www.nami.org
Andrew Sperling andrew@nami.org
Darcy Gruttadaro e-mail darcy@nami.org
Dana Crudo danac@nami.org
National Alliance to End Homelessness (NAEH)
1518 K Street, NW, #206
Washington, DC 20005
(202) 638-1526 (office)
(202) 638-4664 (fax)
www.endhomelessness.org

Steve Berg sberg@naeh.org
Sharon McDonald smcdonald@naeh.org
National Association for the Advancement
of Orthotics and Prosthetics (NAAOP)
1501 M NW, 7 th Floor
Washington, DC 20005
(202) 466-6550 (office)
(202) 737-2517 (fax)
www.naaop.org
Peter Thomas pthomas@ppsv.com
Emily Niederman emily.niederman@ppsv.com
National Association of Councils on Developmental Disabilities (NACDD)
225 Reinekers Lane, Suite 650
Alexandria, VA 22314
(703) 739-4400 (office)
(703) 739-6030 (fax)
www.nacdd.org
Karen Flippo kflippo@nacdd.org
Sharon Scribner sscribner@sonnenschein.com
National Association of County Behavioral Health and Development Disability Programs (NACBHD)
25 Massachusetts Avenue, NW, #500 Washington, DC 20001
(202) 661-8816 (office)
(202) 661-8871 (fax)
www.nacbhd.org
 
Maeghan Gilmore mgilore@nacbhd.org
Ellen G. Witman ewitman@nacbhd.org
 
National Association of Disability
Representatives (NADR)
c/o Coalition for Affordable Health Coverage

1615 L Street, NW, Ste. 650
Washington, DC 20036
(202) 626-8573 (office)
(202) 626-8593 (fax)
www.nadr.org
 
Laura Trueman ltrueman@jeffersongr.com
Art Kaufman art@gsinet.net
(603) 478-4844 phone
Chris Marois chris@andersonmarois.com (727) 327-0931 phone
National Association of Private Special
Education Centers (NAPSEC)
1522 K Street, NW, Ste. 1032
Washington, DC 20005
(202) 408-3338 (office)
(202) 408-3340 (fax)
www.napsec.com
Sherry L. Kolbe napsec@aol.com
National Association of School
Psychologists (NASP)
4340 East West Highway, Ste. 402
Bethesda, MD 20814

(301) 657-0270 (office)
(301) 657-0275 (fax)
www.nasponline.org
Stacy Skalski e-mail sskalski@naspweb.org
National Association of Social Workers, Inc. (NASW)
750 First Street, NE, #700
Washington, DC 20002

(202) 408-8600 (office)
(202) 336-8311 (fax)
www.socialworkers.org
James Finley jfinley@naswdc.org
National Association of State Directors of Special Education (NASDSE)
1800 Diagonal Road, Ste. 320
Alexandria, VA 22314
(703) 519-3800 (office)
(703) 519-3808 (fax)
www.nasdse.org
Nancy Reder nancy.reder@nasdse.org
Amanda Lowe amanda.lowe@nasdse.org

National Association of State Head Injury
Administrators
(NASHIA)
4330 East West Highway, Suite 301
Bethesda, MD 20814
(301) 656-3236 (office)
(301) 656-3530 (fax)
www.nashia.org

Kenneth Currier khcurrier@tbitac.nashia.org

National Association of State Mental Health
Program Directors
(NASMHPD)
66 Canal Center Plaza, Ste. 302
Alexandria, VA 22314
(703) 739-9333 (office)
(703) 548-9517 (fax)
www.nasmhpd.org

Elizabeth Prewitt elizabeth.prewitt@nasmhpd.org
National Center for Learning Disabilities (NCLD)
5803 Helmsdale Lane
Alexandria, VA 22315
(703) 922-5039 (phone & fax)
www.ncld.org

Laura Kaloi lkaloi@ncld.org
National Coalition on Deaf-Blindness (NCDB)
111 Middle Neck Road
Sands Point, NY 11050
(1-516) 944-8900 (office)
(1-516) 944-5984 (fax)
www.helenkeller.org
Joe McNulty (ext. 270) hkncdir@aol.com
National Collaborative on Workforce
And Disability/Youth (NCWD/Y)
c/o Institute for Educational Leadership

4455 Connecticut Ave., NW, #310
Washington, DC 20008
(202) 822-8405 (office)
(202) 872-4050 (fax)
www.ncwd-youth.info
Curtis Richards richardsc@iel.org
Sallie Rhodes rhodess@iel.org
Rebecca Hare rarer@iel.org
National Consortium of Physical Education & Recreation for Individuals with Disabilities (NCPERID)
4009 Gallatin Road, #204
Hyattsville, MD 20781
(724) 685-1070 (office)
(724) 738-4890 (fax)
www.ncperid.org
Bob Arnhold Robert.arnhold@sru.edu
National Council for Community
Behavioral Healthcare (NCCBH)
12300 Twinbrook Parkway, Ste. 320
Rockville, MD 20852
(301) 984-6200 (office - MD)

(202) 842-1240 (office – DC)
(301) 881-7159 (fax)
www.nccbh.org
Allison Fort allisonf@nccbh.org
Charles Ingoglia chucki@nccbh.org
Tammy Seltzer tamiz@nccbh.org
National Disability Institute (NDI)
1667 K Street, NW, #640
Washington, DC 20006
(202) 296-2043 (office)
(202) 296-2047 (fax)
www.ndi-inc.org
Johnette Hartnett jhartnett@ndi-inc.org
National Disability Rights Network (NDRN)
Formerly National Association of Protection and Advocacy Systems (NAPAS)
900 2nd Street, NE, Ste. 211
Washington, DC 20002
(202) 408-9514 (office)

(202) 408-9520 (fax)
/www.ndrn.org
Cheryl Bates-Harris
cheryl.bates-harris@ndrn.org
Curt Decker curt.decker@ndrn.org
Christina Galindo-Walsh
christina.galindo-walsh@ndrn.org
Kathy McGinley kathy.mcginley@ndrn.org
Joan Magagna joan.magagna@ndrn.org
Kenneth Shiotani Kenneth.shiotani@ndrn.org
Kaaryn Sanon Kaaryn.sanon@ndrn.org
Eric Buehlmann eric.buehlmann@ndrn.org
David Hutt david.hutt@ndrn.org
Elizabeth Priaulx Elizabeth.priaulx@ndrn.org
Brendan Jones Brendan.jones@ndrn.org
Ron Hager ron.hager@ndrn.org
National Down Syndrome Congress (NDSC)
P.O. Box 793
Olney, MD 20830
(301) 570-8892 (office)
(301) 570-7022 (fax)
www.ndsccenter.org
Susan Goodman susan1961@aol.com
National Down Syndrome Society/National Policy Center (NDSS)
8650 Georgia Avenue
Silver Spring, MD 20910
(800) 743-5657 (office)
301-563-6896 (fax)
www.NDSS.org
Ricki Sabia rsabia@ndss.org
Stephanie Smith Lee slee@ndss.org
National Industries for the Blind (NIB)
1901 N. Beauregard Street, Ste. 200
Alexandria, VA 22311-1727
(703) 998-0770 (office)
(703) 671-9053 (fax)
www.nib.org
Pat Beattie pbeattie@nib.org
Christine Dawson cdawson@nib.org
National Multiple Sclerosis Society (NMSS)
1100 New York Ave., NW, #660
Washington, DC 20005
(202) 408-1500 (office)
(202) 408-0696 (fax)
www.nationalmssociety.org
Sandra Grance sandra.grance@nmss.org
Shawn O’Neail shawn.oneail@nmss.org
Kimberly Cantor kimberly.cantor@nmss.org
David Chatel david.chatel@nmss.org
National Organization of Social Security
Claimants’ Representatives (NOSSCR)
1101 Vermont Ave., NW, #1001
Washington, DC 20005

(202) 216-0030 (office)
(202) 216-0031 (fax)
www.nosscr.org
Ethel Zelenske nosscrdc@worldnet.att.net
National Organization on Disability (NOD)
910 16 th Street, NW
Washington, DC 20006
(202) 293-5960 (office)
(202) 293-5968 (TDD)
(202) 293-7999 (fax)
www.nod.org
Betsy Berry berryb@nod.org
Hilary Styronh styronh@nod.org
Rik Opstelten opsteltenh@nod.org
National Rehabilitation Association (NRA)
633 South Washington Street
Alexandria, VA 22314-4109
(703) 836-0850 (office)
(703) 836-0848 (fax)
http://nationalrehab.org
Patricia Leahy pleahy@nationalrehab.org
National Rehabilitation Counseling
Association (NRCA)
GWU/CHOS
2134 G Street, NW, Room 318
Washington, DC 20037
(202) 994-1334 (office)
(202) 999-3436 (fax)
http://nrca-net.org
Dr. Kenneth C. Hergenrather
hergenkc@gwu.edu
National Respite Coalition (NRC)
4016 Oxford Street
Annandale, VA 22003
(703) 256-9578 (phone)
(703) 256-0541 (fax)
www.chtop.com
Jill Kagan jbkagan@verizon.net
National Spinal Cord Injury Association (NSCIA)
6701 Democracy Blvd, Suite 300-9
Bethesda, MD 20817
(301) 717-7447 phone
(301) 990-0445 fax
www.spinalcord.org
Marcie Roth mroth@spinalcord.org
NISH
8401 Old Courthouse Road

Vienna, VA 22182
(571) 571-226-4660 (office)
(571) 288-9146 (fax)
www.nish.org
Tony Young tyoung@nish.org
Bill Jefferson email: bjefferson@nish.org
David Fields dwffields@nish.org
Therese Stein tstein@nish.org
Brian DeAtley bdeatley@nish.org
Larrissa Timmerberg ltimmerberg@nish.org
Alicia Epstein aepstein@nish.org
Paralyzed Veterans of America (PVA)
801 18 th Street, NW
Washington, DC 20006
(202) 872-1300 (office)
(202) 416-7706 (fax)
www.pva.org
Maureen McCloskey (416-7696) maureenm@pva.org Lee Page (416-7694) leep@pva.org
Susan Prokop (416-7707) susanp@pva.org
Rehabilitation Engineering and Assistive
Technology Society of North America (RESNA)
1700 N. Moore Street
Arlington, VA 22209

(703) 524-6686 (office)
(703) 524-6630 (fax)
www.resna.org
M. Nell Bailey nbailey@resna.org
Nancy Meidenbauer mmeidenbauer@resna.org
Research Institute for Independent
Living (RIIL)
2322 40 th Place, NW, Ste. 203
Washington, DC 20007

(202) 295-9033 (office)
(202) 295-9034 (fax)
David Auxter dauxter@bellatlantic.net
Bill Halloran billhalloran@verizon.net
1312 Palm Lane
Bowie, MD 20716
(301) 249-5699 phone
(202) 295-9034 fax
School Social Work Association of
America (SSWAA)
2800 Quebec Street, NW, Ste. 218
Washington, DC 20008
(202) 686-1637 (office)
(202) 686-1637 (fax)
www.sswaa.org
Myrna Mandlawitz mandlawitz@verizon.net
Spina Bifida Association of America (SBAA)
4590 McArthur Blvd., NW, Ste. 250
Washington, DC 20007
(202) 944-3285 (office)
(202) 944-3295 (fax)
www.sbaa.org
Adriane Griffen agriffen@sbaa.org
TASH
1025 Vermont Avenue NW, 7th Floor

Washington, DC 20005
(202) 263-5600 (office)
www.tash.org
Barb Trader btrader@tash.org
Gerri Hanna ghanna@tash.org